Monthly Archives: June 2017

Important Life Lessons Down Syndrome Siblings Taught Us

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There is a true connection between a child who has special needs and their siblings. Honestly, there’s no other connection like it. I know this for a fact, first hand from watching Leah & Aiden and how they are with Joey. It’s truly wonderful to sit back and watch them communicate and play with him. They always seem to know exactly what he wants/needs.

I’ve decided to “interview” Leah & Aiden about having Joey as their brother, and share their responses with my readers. I’m not going to go into details about what they said, just know that I’m super proud of them for opening up to me and for their honesty. They truly are amazing kids!

I also decided that Leah is mature enough to read a book called Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters by Dr. Brian Skotko and Susan Levine, so I went ahead and ordered it for Leah to add to her summer reading. I may have to read it as well and perhaps the two of us will do a book review on it once we’ve both finished reading it!

Dr. Brian Skotko just happens to have a sister who has Down syndrome is one our nation’s top genetic specialists specializing in Down syndrome, and runs the Down syndrome program out of Mass General Hospital. So he knows first hand the connection that Leah and Aiden have with Joey.

I hope you enjoy Leah & Aiden’s first YouTube video just as much as I did making it with them!

What a Wondrous Book!

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As soon as I saw the trailer for the upcoming movie Wonder, I knew I needed to order the book by R.J. Palacio for myself! And since the age range of the book is 8 and up, I knew Leah be able to read it as well. Being the sibling of such an extraordinary brother, I knew this would be a book she would enjoy as well.

It was yet another book I couldn’t put down! I finished reading Wonder in 3 days, not too hard seeing that it’s geared for children 8 and over.

I felt like I was right in the middle of Auggie’s life! Not only reading from his point of view but also from his loved ones as well. Especially his parents. Being the parent of special needs child, there were parts I could totally relate to. Even though August doesn’t have a developmental/ cognitive delay, he still gets the looks, stares and rude comments from people who don’t know Auggie and his family.

I highly recommend Wonder to any adult or child who can read at a 5th grade reading level. Now that I’m done reading it, I’ve passed it onto Leah who is just like her mommy and can’t put the book down either!

Sadly, we have to wait till November for the movie to come out in the theaters, until then, I have time to read the other small handful of books featuring Auggie and his family & friends! I’ve included the movie trailer below if you haven’t seen it yet. Just think, Owen Wilson AND Julia Roberts, it doesn’t get much better than that!