Below are a few of my favorite tid-bits of inspiration that I’ve read during my journey so far Raising Joey.

Holland-flowers

WELCOME TO HOLLAND

by Emily Perl Kingsley

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

kiMbernaT

Psalm 139:13-14

For you created my inmost being;
you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made;
your works are wonderful, I know that full well.

kiMbernaT

Two Words

By Cheryl Ward

Your birth brought us closer
As death lingered near
Your strength as you struggled
Gave flight to our fear

Down syndrome they whispered
Days after your birth
Two
words that portrayed
A false image of your worth

Those words did not tell us
Of the love you would bring
Or the power your smile has
To make our hearts sing

Down syndrome didn’t tell us
What kind of child you would be
Filled with amazing surprises
Shared with your father and me

Hard work, determination,
teaching and learning, it’s true
Down syndrome means much of this
For each of us, not just you

Wonder child, spirited child
You’ve grown and you’ve thrived
Your every achievement
Still fills us with pride

No matter the voice used
Two words can’t describe
The fullness you’ve added
To so many lives

Down syndrome, those frightening words
Whispered so long ago
Never did they prepare me
For the person I now know

kiMbernaT

The Creed of Babies With Down Syndrome

By: author unknown

My face might be different

But my feelings the same

I laugh and I cry

And I take pride in my gains

I was sent here among you

To teach you to love

As god in the heavens

Looks down from above

To him I’m no different

His love knows no bounds

It’s those here among you

In cities and towns

That judge me by standards

That man has imparted

But this family I’ve chosen

Will help me get started

For I’m one of the children

So special and few

That came here to learn

The same lessons as you

That love is acceptance

It must come from the heart

We all have the same purpose

Though not the same start

The Lord gave me life

To live and embrace

And I’ll do as you do

But at my own pace.